Project GHB Newsletter

Volume 1, No. 5

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This newsletter is located at: http://www.projectghb.org/newsletters/20031210.htm

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Announcements / What's New 

PLEASE CHECK YOUR LOCAL STORES FOR THIS PRODUCT!

(Download Once Removed info sheet to read and distribute. Choose: Word Format or HTML Format)


Once Removed
nail polish remover (pink liquid) is of growing concern, as it is being consumed all over the country by GHB addicts.  They are drinking it straight up!!!  Please read the Project GHB letter about this problem and consider checking out your local stores, such as Walgreens, CVS, Rite-Aid, Savon, etc., etc.  If they have Once Removed on their shelves, please give them a copy of the attached letter and perhaps also a copy of the GHB Fact Sheet.  You may find that it is most helpful to talk to the store pharmacist where there is one.  The letter also addresses possible other products with the primary ingredient of butyrolactone or gamma butyrolactone, which are usually nail polish removers or contact cement or super glue removers.  There are a few paint strippers too with that as the primary ingredient.

Project GHB did not issue a formal press release because we are hesitant to go “public” about it.  I don't want to alert other addicts and any rapists who aren't already aware of this, but we must do something!If reporters do pick up on it, well, so be it!   I had HOPED to do this quietly through the corporate offices and individual stores. Walgreens did respond promptly to our request and has taken the product off of their website where it was on sale.  Mothers of some of the addiction cases have also already contacted corporate offices, local stores, etc., making immediate action a necessity.  There are families in crisis and this product is the key source at the moment.  I am requesting that no one make further contact with the manufacturer of this product.  That has been done by one mother (as she had every right to do!) but I think it is best focus on public accessibility for now.  I have no idea whether or not they were aware of the problem before.  We have no comment or information as to the intent or prior knowledge of the company to this problem.  Assuming no ill intent, it is our hope that they will reformulate the product and eliminate the problem.

 Some addicts are using this just as a temporary fix until their order arrives from other sources, but some are using it as their sole/primary source.  We also realize that if this product is taken off the shelves, additional addicts will be in need of detox treatment.  But some who are really trying to stop find it hard to do so with it calling to them from the shelf at nearby stores!!!  Consider also copying our GHB Fact Sheet and GHB Addiction Fact Sheet to distribute with the letter.  And, we do have a detox protocol that can be emailed or faxed to anyone needing it to give to local treatment centers and emergency rooms.  It is also available on the Texas Commission on Alcohol and Drug Addiction website at http://www.tcada.state.tx.us/research/populations/GHB_Withdrawal.pdf  Initiating the publication and posting of this protocol was a tremendous service from TCADA. 

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  •  New Items For Sale

    PROJECT GHB BALL CAPS, T-SHIRTS & POLOS

    Go to the complete store.
    Polos, T-shirts and caps in purple with the Project GHB logo are now available through our website store! They are nice quality and help spread the word about our efforts! T-shirts and polos can be ordered in S-XXL sizes (mention size in your order)

    • T-shirts--$16
    • Polos--$25
    • Caps--$12

    Also, if you haven’t downloaded the $12 Power Point program “Recognizing GHB, MDMA & Ketamine,” please do so and encourage others to do so! It’s a great way to spread the information and it enables us to do more to get the message out there. Every little bit helps. We have no major funding and could do so much more with a little help. We will be adding MDMA (Ecstasy) brochures hopefully in the near future as pre-printed, like our GHB brochures. Project GHB needs your donations to make this information available to as many as possible. Funding for printing and postage are truly essential.

    -----------> Go to the complete store.
     

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GHB IN SOUTH AFRICA—NOT A SMALL ISSUE

Several years ago, a chemical company in South Africa was a primary source of GHB internationally. Ironically, their website said that they would ship to the USA and UK but didn’t sell it in their own country as they considered it dangerous. They later claimed that they would no longer ship to the USA. Now we hear that South Africa indeed has a problem with recreational abuse of GHB.

Recently Project GHB received this Feedback Form inquiry:


“To whom it may concern, I have found your site very interesting, but did notice that there is no information on the GHB situation in South Africa. South Africa has a roaring party scene and GHB is on the up-and-coming in clubs and at larger dance events. This seems to be particularly true in the gay-club scene where it is becoming routine to see guys carried off the dance floor by friends half unconscious. More and more people I speak to seem to be heading towards GHB use, and I know of one friend which claims he took too much and passed out for over five hours.

Something I thought you might find very interesting, last night I went clubbing and decided to ask a couple people what they had taken – if anything. All 12 people I asked had taken some form of drug - eight had taken GHB!”

Project GHB will be supplying some educational materials for S. Africa in the hopes of making a difference in this risk-taking scenario.

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WHERE ARE FOWKES & DEAN?

WHY YOU DON’T SEE FOWKES & DEAN FEATURED ON THIS SITE

By Trinka Porrata

 We periodically get inquiries as to why we don’t feature information from Steven Fowkes and Dr. Ward Dean on our website, as with the inquiry below.   It is perhaps time to respond. 

First—I’ll let you read the latest inquiry:

From: DalePatterson@aol.com
Sent: Wednesday, July 02, 2003 9:55 PM     

To: Project GHB

 (((His email was a response to a prior article about the UK scheduling GHB)))  I'm not surprised to hear this.  They did the same thing to LSD once the kids got a hold of it.  LSD psychotherapy, when done under controlled conditions and professional auspices, has an excellent clinical track record for a wide variety of disorders, especially alcoholism.   This all well-documented. 

In case you are unaware, the FDA recently approved the use of GHB for narcolepsy and associated cataplexy.  And prior to the misuse and bad press GHB has received, a number of pharmeceutical companies had filed 15 investigational new drug (IND) reports to the FDA, covering applications such as sleep- disturbance, anxiety disorders, reducing schizophrenic and Parkinson symptoms, decreased pain and improved sleep in fibromyalgia, decreasing drug withdrawal symtoms from alcohol and opiates, improving memory problems, relieving symptoms of Huntington's chorea, stimulating natural growth hormone release, lowering cholesteral and several others.

These IND's are very expensive to produce and it is doubtful that major pharmaceutical companies would invest so heavily in a drug that is "all bad and totally dangerous."  

GHB has been demonized as a result of its irresponsible use. 

For a more balanced and positive review of GHB, read GHB: The Natural Mood Enhancer: The Authoritative Guide to its Responsible Use, by Ward Dean, M.D., John Morgenthaler and Steven William Fowkes (also the authors of Smart Drugs and Nutrients and Smart Drugs II.   

Dale Patterson, M.S., C.A.C.B.,
CPPS, BCIAC-EEG-Associate Fellow
BCIAC-Senior Fellow
Clinical/Executive Director
Biofeedback & Alternative Medicine Centers  

My reply:

I am well aware of Fowkes/Dean and well aware of the FDA’s approval of GHB (marketed as Xyrem, aka sodium oxybate) for the rare combination of narcolepsy with cataplexy (not for narcolepsy alone).  I testified at the FDA hearing and personally believe it was a mistake for the drug to be approved, at least without being specifically excluded from the “off label use” policy as recommended by the FDA’s own evaluation committee.  I truly realize the limited resources available to those with narcolepsy/cataplexy, but this drug is of grave concern.   As for the 15 Investigative New Drug (IND) reports he references, virtually all were disproved or abandoned, so the “weight” of the number is not signficant. 

Fowkes and Dean have created an “aura” of expertise on GHB via the Internet and their book, but are not affiliated with the extensive new research projects grant funded by the National Institute of Drug Abuse, for example, or to my knowledge with any other key research projects in recent years.  Their statements are a mixture of some truth with some things that we now know are either inaccurate or incomplete or are exclusive of new knowledge.  I have heard their testimony in various cases and have read their works.  I do not consider their book or websites to be resources that we need.  We work with the top researchers on this issue nationwide/internationally and consider their works to be of the most importance.  We work with experts who are published in recognized peer review journals.    These researchers and front line clinicians are working on diverse GHB-related issues such as 1) the extremely rare disease in which some humans naturally produce excess levels of GHB and live in a virtual state of GHB overdose; 2) issues of improved testing for GHB/analogs in hair, body fluids and products, 3) GHB overdose treatment, 4) GHB addiction/withdrawal treatment and rehab, 4) drug facilitated sexual assault prevention, response, evidence collection and prosecution, etc.  We are interested in the most accurate, properly documented, up to the minute information available, not rehashes of the old and inaccurate. 

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Inquiry: Re Board Member Backgrounds & Addiction Representation On The Board

The following is from input to our GHB FEEDBACK FORM. We thought we should share it and our reply.

Submitted by Denovo on Thursday, November 27, 2003 at 13:20:21

Comments: Why are there no board members mentioned or currently serving, that have gone through the addiction personally. Do you have any recovering addicts serving on the board, people who've actually been through the pain that accompanies addiction, withdrawal, and recovery?? If you don't, I think you should include those individuals.

Our Reply:

The website was created by a family who lost a son to GHB. Three of the five board members currently serving have lost someone to the drug GHB in various ways (from voluntary to involuntary ingestion). One son was deeply addicted to GHB and eventually committed suicide, unable to escape from it. The board members have traditionally been people who have donated incredible amounts of time to ALL of the issues surrounding GHB, from overdose and voluntary use to addiction and sexual assault and death. We have operated without significant funding (money goes into education and distribution of literature, etc.), thus it is all volunteer time given. Incorporated as a nonprofit, there were only five positions originally created because that's all who were so deeply involved at the time. Recently we have talked about the possibility of expanding the number of board members. It involves some paperwork but nothing impossible to do. As for the pain of the addiction and recovery, Diane certainly knows about that, having gone through it with her son. John works daily with those addicted to any and all drugs and has personally experienced the tragedy of drug addiction, though not GHB. I work daily with dozens of addicts and their families and loved ones. I certainly know the pain they are all going through, from those who have succeeded in escaping it to those who have not yet and are still actively using GHB to those families who are coping with the loss of someone who didn't make it. We also work closely with several doctors who have seen it first hand and who have donated incredible amounts of time to helping with GHB addiction, plus other issues. Coming forward and admitting publicly to being a GHB addict is very difficult. Many are still struggling and/or trying to go on with their lives. Public knowledge of their addiction could be harmful to their jobs or efforts to find new jobs. That's why we are soooooo very thankful to those who have been willing to talk to the public, like the Young family in Washington who were featured on the Dateline show in June. Airing your heartbreak and struggle on national TV was not an easy thing to do. Others have talked on shows for us like EXTRA and several local or regional TV segments. Their contributions are invaluable to bringing awareness to this issue. Many have lost everything in terms of finances, family ties, jobs, etc., and don't have time to donate to the issues; they are seeking to put their lives back together and that's the most important thing they can do.

We created "state teams" so that people who wanted to get involved could do so and give as much or as little time as they can. It is going well as more and more teams are created. Some are very active. Some whose personal issues involved being victimized by GHB are also very actively involved in bringing about awareness on the addiction issues.

Being a board member doesn't involve any specific time commitments, but does require being rather "public" with one's losses or issues. Your heart is on the line serving on a board like this. Through the years there have been some bizarre threats to people involved in trying to stop the spread of GHB abuse. Frankly, anyone who truly wants to be involved can indeed write to us about wanting to be a board member and we would consider doing the paperwork to expand the board.

NOTE: We are just now about to post the committee for the next GHB conference (September 2004 in Las Vegas). The committee members are an awesome array of disciplines and experience. It is hoped that their involvement will help bring about increased awareness, training improvements, better response to rape issues in terms of prosecution, testing, etc., better treatment for those addicted to GHB, etc. We have done a lot but realize there is a long way to go to make GHB addiction treatment common knowledge in the medical world. Anyone interested in helping with conference planning, promotion, donation of items or services, etc., are welcome to join us.

Trinka

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Selected Comments Submitted at Project GHB

Name: Mark Fratzke, MAC, CSAC
State: HI
Comments: Great presentation at this year's NAADAC the Association for Addiction Professionals' Annual Meeting in DC. It motivated me to check out your website and learn more about this nasty compound.

Thank you,

Mark Fratzke, MAC CSAC

President: Hawai'i Association of Addiction and Drug Abuse Counselors

 http://www.cchono.com/~fratzke


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This newsletter is located at: http://www.projectghb.org/newsletters/20031210.htm

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DRUG ID & SYMPTOM GUIDE
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Contains 133 color photos of illicit street drugs and drug paraphernalia, symptoms of influence, effects, duration, methods of ingestion, overdose symptoms and field drug testing procedures. Also includes street slang glossary and more. Authored by Sgt. Ken Whitley, a veteran Drug Recognition Expert. (Includes Ecstasy and GHB and associated paraphernalia). Lots of photos

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